Palliative Care in Amyotrophic Lateral Sclerosis

Palliative Care in Amyotrophic Lateral Sclerosis

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Amytrophic Lateral Sclerosis (ALS or motor neurone disease) is a progressive neurodegenerative disease that can cause profound suffering for both the patient and their family. Whilst new treatments for ALS are being developed, these are not curative and offer only the potential to slow its progression. Palliative care must therefore be integral to the clinical approach to the disease. Palliative Care in Amyotrophic Lateral Sclerosis: From diagnosis to bereavement reflects the wide scope of this care; it must cover not just the terminal phase, but support the patient and their family from the onset of the disease. Both the multidisciplinary palliative care team and the neurology team are essential in providing a high standard of care and allowing quality of life (both patient and carer) to be maintained. Clear guidelines are provided to address care throughout the disease process. Control of symptoms is covered alongside the psychosocial care of patients and their families. Case studies are used to emphasise the complexity of the care needs and involvement of the patient and family, culminating in discussion of bereavement. Different models of care are explored, and this new edition utilizes the increase in both the evidence-base and available literature on the subject. New topics discussed include complementary therapies, personal and family experiences of ALS, new genetics research, and updated guidelines for patient care, to ensure this new edition remains the essential guide to palliative care in ALS.As ALS is a disease of progressive loss and increasing disability it is essential that all aspects of care are addressed as early as ... care for all health professionals and awareness of the symptomatic treatments that can be offered to people with ALS.9 Within Europe, the ... States specialist palliative care services only receive Medicare funding for the last 6 months of life, although this can be extended.


Title:Palliative Care in Amyotrophic Lateral Sclerosis
Author: David Oliver, Gian Domenico Borasio, Wendy Johnston
Publisher:OUP Oxford - 2014-03-20
ISBN-13:

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